Day 1

I am 38 years old, and yes, I have cystic fibrosis. I'm one of the lucky ones . . . but there are more and more lucky ones every day. I'm often asked what my secret is . . . or what can I tell other parents of a child with CF, or what can I tell other young people living with CF.

So here it is . . . YES. IT ABSOLUTELY, POSITIVELY, SUCKS TO HAVE CYSTIC FIBROSIS.

If I could, I would love, for one day, to know what it is like to live without the disease.

BUT, since I do not know whether that day will ever come, I choose to live with, and not die from the disease (borrowing from a favorite song from the musical RENT).

You can too . . .

So, to that end, I'll rant about life with CF. Who knows . . . maybe you'll decide it's better to live with the disease, than to die from it, too. It doesn't mean we may not die from CF, but we'll at least enjoy the journey of life!

One note . . . I'm not a doctor, nor do I play one on tv. But I am a lawyer . . . I know to leave medical issues well enough alone. Go to cff.org for some quick answers to medical questions about CF. Don't go looking to this blog . . .