Ignoring CF
I am blessed to be healthy enough with my CF to have given birth to three wonderful sons. They know about my CF (well, the oldest two anyway - my two year old prefers to pull apart my nubulizer while I'm doing my medicines). They know we're involved with the CFF and they know mom has a bad set of lungs. They know their Aunt Janet died from CF before they were born - but they also know that right now mom is healthy, doesn't need a lung transplant like Janet did and that they shouldn 't worry.
But much like I tried to avoid the topic of my CF when I was a kid, they seem to be doing the same thing. My oldest had a Boy Scout merit badge project where he had to do a report on a charitible organization. Research it and give an oral presentation. Why don't you do the Cystic Fibrosis Foundation, I asked. "That will be easy - we know a lot about it."
He rolled his eyes. "No, I don't want to do that." And proceeded to do his project on the soup kitchen our church supports.
Okay, a good cause, but I was a little hurt . . . for awhile. Until I realized like mother, like son. I prefer not to focus on my CF - and I've passed this attitude on to my boys. Thinking about it too much can be too painful.
Or maybe he's just being a typical 12 year old who doesn't want to do anything his mom suggests!!!!
But much like I tried to avoid the topic of my CF when I was a kid, they seem to be doing the same thing. My oldest had a Boy Scout merit badge project where he had to do a report on a charitible organization. Research it and give an oral presentation. Why don't you do the Cystic Fibrosis Foundation, I asked. "That will be easy - we know a lot about it."
He rolled his eyes. "No, I don't want to do that." And proceeded to do his project on the soup kitchen our church supports.
Okay, a good cause, but I was a little hurt . . . for awhile. Until I realized like mother, like son. I prefer not to focus on my CF - and I've passed this attitude on to my boys. Thinking about it too much can be too painful.
Or maybe he's just being a typical 12 year old who doesn't want to do anything his mom suggests!!!!
posted by Katie with a K | 8:23 AM
1 Comments:
Thank you for leaving a comment on my blog. It is so good to read posts like yours. I spend a lot of time reading on the forums and blogs at cysticfibrosis.com. Sometimes that's a good thing, and sometimes it isn't.
It was the most heartbreaking experience when my son called me and asked me if anyone in our family had cf. I had just been to see the new baby, had come back home, and then the phone call. Virginia instituted the blood test screening in March. Ella was born in August.
Right now, she is very healthy. She takes her enzymes with applesauce. Her parents do chest PT morning and evening. Her doctor said that when she's two, she can probably use the vest. She doesn't have any lung involvement right now, but I know that those days will come.
I'm going to recommend your blog to my son and his wife. I think they're a little bit careful about what they read. I have a link to Breathing Deeply on my sidebar. Lauren is a young lady in California, who was born with meconium ileus. She has a wonderful outlook as well.
Thank you again for your comment.
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